Episode 2 – Useful contacts


Superior Semicircular Canal Dehiscence is caused by a hole in the bone between the brain and the inner ear – the organ responsible for our balance. The hole is tiny, but its effects can be surprisingly powerful- symptoms can include loss of hearing, enhanced hearing of noises inside the body, sensitivity to loud noises and vertigo.

For more information on the condition please go to http://scdssupport.org/forum/viewforum.php?f=21

HAE – Isabel Richards

HAE is a condition related to your body’s levels of C1 inhibitor, a protein found in the blood which controls inflammation in the body. Symptoms include prominent swelling of the body’s tissues (angioedema) which can happen anywhere from the hands and feet to the face, airway and internal organs, and last for up to 5 days. This disorder affects just one in 50,000 people and can be treated.

For more information on the condition please go to http://www.haeuk.org/

EPP- James Creag

Erythropoietic Protoporphyria or EPP is a rare condition where the individual becomes highly sensitive to sunlight due to a build-up of certain chemicals in the blood. These absorb sunlight and can damage the surrounding skin, leading to itching or burning pain, swelling, blistering and even scarring.

For more information on the condition please go http://www.porphyria.org.uk/