Find out more about Nelly and Harlequin Icthyosis

Nusrit ‘Nelly’ Shaheen from Coventry has skin that cracks and appears scaly, meaning that she has to scrub off layers of dead skin each day in a two-hour, twice daily routine. Nevertheless, Nelly battles to live a normal life in the face of extreme adversity.

She has defied odds to become the world’s oldest known survivor of Harlequin Ichthyosis, a condition which causes skin to grow ten times faster than normal.

The Samuel Hardgrave Harlequin Icthyosis Research Trust (SHHiRT) is a charity dedicated to research into Harlequin Icthyosis and to improving the lives of those, like Nelly, who are affected by it.

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