Find out more about Nelly and Harlequin Icthyosis

/ 22 March 2017

Nusrit ‘Nelly’ Shaheen from Coventry has skin that cracks and appears scaly, meaning that she has to scrub off layers of dead skin each day in a two-hour, twice daily routine. Nevertheless, Nelly battles to live a normal life in the face of extreme adversity.

She has defied odds to become the world’s oldest known survivor of Harlequin Ichthyosis, a condition which causes skin to grow ten times faster than normal.

The Samuel Hardgrave Harlequin Icthyosis Research Trust (SHHiRT) is a charity dedicated to research into Harlequin Icthyosis and to improving the lives of those, like Nelly, who are affected by it.

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